To: The Honorable Members of the House of the Representatives
Funding for research for chronic neurological illnesses (ME/CFS) & (MCS)
There is a significant lack in funding for support and research into debilitating chronic illness Myalgic Encephalomyelitis (ME/CFS) and Multi Chemical Sensitivities (MCS), its accompanying illness, in Australia. Thousands of sufferers are still undiagnosed, or misdiagnosed due to the overwhelming number of medical practitioners who lack the knowledge about this illnesss.
Funding for ME/CFS and MCS is well overdue. If there is no research, no cure can be found. ME/CFS is a very complex neurological illness, affecting all bodily systems. It causes rapid deterioration of health and may result in death. MCS is equally complex and disabling.
Why is this important?
Currently, some 180,000 people are affected by ME/CFS and MCS (R.A.C.P 2004). ME/CFS was identified by the World Health Organisation in 1969 (ICD G93.3), as a chronic neurological complex illness, with multiple debilitating symptoms. Despite recognition by the WHO, no universally recognized treatment protocols are available.
Many sufferers were diagnosed as far back as the 1980's, but due to lack of research for these illnesses, there is still significant lack of knowledge and understanding amongst the medical profession, Government institutions and the wider community.
Sufferers spend between $5000 and $25000 on alternative medicine treatments, forcing many families into financial ruin and dependency. Living with ME/CFS and MCS is extremely stressful, isolating and frustrating, as it impacts on all areas of a person's life. Due to belated diagnosis thousands of sufferers have been permanently damaged.
This is why the government of Australia must invest in funding for research as soon as possible.
How it will be delivered
The Petition will be delivered to the House of Representatives.